Updates and a Request for Your Legislative Advocacy

Gerry Beagles • May 17, 2021

As executive director of Garden Center Services, I can say that this challenging past year of the pandemic has been especially stressful for community-based agencies like ours that provide residential support to adults with intellectual and/or developmental disabilities.

GCS currently serves 140 individuals who are either living in one of our 12 community living arrangements or at home with their families.


Our group homes are located in several southwest Cook County communities, with one home located in DuPage County. I am so proud of our staff who have continued to provide a supportive, stimulating environment within our homes while having to focus so diligently on keeping persons safe from the COVID- 19 virus. The time, energy and resources that we have expended to accomplish this have been exhaustive but worth every effort if it means keeping our wonderful participants safe and healthy.


One component of our overall protection strategy was to get as many of our staff vaccinated as possible. As healthcare workers providing attention to the population we serve, our staff was designated 1A as it relates to receiving the shots. Initially, many of our staff, just like the general public, had concerns and questions about the real benefits and effectiveness of the vaccines, especially because they were developed in an expedited timeframe.


The staff willing to commit initially to receive the vaccine was somewhere in the low to mid 30s percentile range. Through many one-on-one conversations, the accessibility of informative educational material and videos, an interval of time during which the vaccine has been proven safe, and the effect of peer expectations, I am pleased to share that currently over 85 percent of Garden Center Services’ staff have been vaccinated! This is a real achievement, and I’m hopeful more staff will come forward.


The staff has been able to take advantage of vaccinations provided by the Stickney Public Health Department and also at clinics that have been held right at the agency’s State Road day program location. A big thank you goes out to Associate Executive Director Cindy Haworth, who worked tirelessly to establish relationships with the Walgreens and CIMPAR pharmacies, and to her team that helped coordinate and staff the five clinics we’ve had thus far. We are so incredibly grateful for the large number of our employees and the individuals we support, both in our living arrangements and the community, who were able to get their shots. This is such a demonstration of #GardenCenterStrong.


In addition to being safe, we also want our staff to be adequately paid. For years, our agency has been part of the They Deserve More coalition, which has been working to increase the hourly wages of our staff. This year, we are asking our legislators to follow through on the state’s obligation and to fully fund an in-depth survey-supported rate structure that would finally allow Illinois to demonstrate its investment in individuals with intellectual and/or developmental disabilities, their families and their direct-care staff.


A study commissioned and funded by the state, and carried out over the last two years by an independent, professional organization, has clearly identified the disparity between our current level of state funding and what it actually costs to provide the services we offer. There are currently resolutions in both the Senate (SB169) and the House (HB194) that, if passed, would be a real game changer for agencies such as ours.


Please take the time to voice your support of these bills to your state legislator. As always, thank you for your incredible support of our agency and the incredible persons we are honored to serve.

Gerry

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By Gerry Beagles April 17, 2025
Any of you that listened to Health Secretary Robert F. Kennedy Jr.’s remarks yesterday about the “autism epidemic” would have spent your time more intelligently if you had watched an episode of the Three Stooges. Kennedy referred to autism as a ‘disease’, versus a developmental disability, and stressed how it destroys families and greatly limits the contributions that persons with this neurological condition can make to society. What a bunch of hogwash! There are many individuals dealing with autism that are living contented, productive lives filled with connection, contribution, and meaning. There are people in the arts, playing sports, employed, paying taxes, enjoying loving relationships, and certainly sitting on the damn toilet! The Secretary’s message is just more misinformation and simply reinforces the stigmatization that holds individuals with an autism diagnosis down and keeps so many in our country from experiencing the gifts and positive impacts that they share.  Please join us and the many advocates supporting persons with neurological differences in seeking a future for these incredible, courageous individuals, where they are suitably championed to create and enjoy the lives they deserve!
By Gerry Beagles March 3, 2025
The joy and happiness of inclusiveness and acceptance were all around us, fanned by the heavy beat of 70’s rock music being played by the volunteer DJ. It was our agency’s Valentine’s dance, hosted by the varsity baseball team over at St. Laurence High School, and both the individuals we support, and the student-athletes were having a blast. One of the major changes I have personally experienced over the last 50 plus years around services to persons with intellectual and/or developmental disabilities has been the movement to see all of us as people first, realizing that it is all the marvelous differences that brings life its’ juiciness! I was very impressed with the welcoming spirit of the baseball team and their strong determination to ensure that our folks would have a terrific time. The entire coaching staff, led by head coach Pete Lotus, demonstrated true leadership as they jumped in and enjoyed the party as well. Whatever the baseball teams’ record is at the end of the season, the Valentine party was a huge W! Sadly, it only took a few days for the elation we had experienced from the dance to change into stress and anxiety due to statements and actions taken by President Trump and those that seem to be blindly following his agenda. Initially, it was the attempt to stop Federal funding that was a threat to the continuation of our services which caused intense fear and worry with many of our parents, guardians, and families. There was a short reprieve as that executive order was rescinded, only to be followed by the next gut punch in the form of a bill that would cut $880 billion in Medicaid funding, which is the main source of financial backing for disability services in Illinois and throughout the country. It has become the highest priority for all of us to communicate to state and U.S. legislators the unfathomable negative ramifications of this bill becoming law! Some of my colleagues and I are traveling to Washington D.C. next week to share our collective stories with as many congresspeople as possible. Inside the March/April special issue of The Leaflet are some heartfelt reflections by persons whose lives are uplifted daily by the services we provide. I hope you will take a few minutes to reflect on the stories they share. May you be safe, and LOUD!
By Gerry Beagles February 28, 2025
Across the many neighborhoods that make up the metropolitan Chicago area, people with intellectual and developmental disabilities (I/DD) rely on an array of support services to live, work and thrive. Nationally, 69% of the community providers that deliver these services are turning away new referrals while 39% are discontinuing existing services because they lack the funding needed to recruit and retain qualified workers. This puts access to services in jeopardy at a time when nearly 512,000 disabled Americans are languishing on their states’ waiting lists. Now, another crisis looms. Community-based services are almost exclusively funded by Medicaid, and in Congress, the House recently approved a budget resolution directing the committee that oversees Medicaid to slash $880 billion in spending. Such a drastic cut will all but dismantle the federal Medicaid program, leaving hundreds of thousands more Americans without the services they need. As a provider of these services, I know firsthand that every community, including this wonderful city of Chicago, is better when it includes everyone— regardless of their disability. If Senators Durbin and Duckworth and Representative Casten agree that our community is stronger when it includes people with disabilities, then they must reject any proposals to cut funding from the federal Medicaid program. Sincerely, Gerry
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