Let’s Do Something Wonderful

Gerry Beagles • July 1, 2021

Every time we look at the clock, we must learn to feel a sense of urgency. We must learn to realize that “now” is happening and will very soon be gone. We must look at the digits on the display and be overcome with an urge to do something before those digits change. Before “now” slips through our fingers. We must look at the ink on the calendar and see an immediate opportunity to do something wonderful, incredible, or beautiful.

Dan Pearce

There is a tepid sense of relief that there is a letting up of the requirements to be as vigilant as we have had to be to keep the mysterious, morphing virus at bay, thus allowing us the basic human gratifications of enjoying an open, genuine smile or actually feeling the assuring hug of a friend. Slowly we are beginning to have our individuals venture back out into the community to enjoy and participate in those many activities and experiences that have been unavailable to them over the last year and four months.

We are so pleased and proud of the response of our staff to the pandemic and of how their heroic efforts kept our people safe and free from catching the virus. We only had a handful of individuals become ill with just one participant and one staff requiring hospitalization. We are very grateful to all of you for the variety of ways in which you supported our efforts, either by your generous donations, or your kind, timely words of encouragement.

While we are joyfully embracing these renewed freedoms we have also had to cope with the reality of impermanence due to the loss of two individuals that we were honored to support. The picture you see is of me and Heidi, a lovely woman that recently passed who for years lived at one of the group homes and attended the day program. The employees and other women that shared their home with her talked about the ways that Heidi truly added to their lives and of how they will miss her. Another incredible person that left us way to soon was George, a gentleman that brought everyone around him huge amounts of joy through his ever-present smile and enthusiasm for life!

Each time a person leaves us I am challenged by the question, “Did we do everything we could to give that individual the life they wanted and deserved?” We always, always, each of us, think that we’re going to be given the time we need to take care of all the things on our to do lists. When are we going to wake up and realize that this just isn’t so. This gift of now is our only reality and I plead that we develop an intense sense of urgency to live our lives fully and help others to do the same.

Let’s grab the opportunity to do something wonderful, incredible, or beautiful!!

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Response to US Health Secretary, Robert F Kennedy Jr.'s, April 16th Briefing on Autism

By Gerry Beagles • April 17, 2025

Any of you that listened to Health Secretary Robert F. Kennedy Jr.’s remarks yesterday about the “autism epidemic” would have spent your time more intelligently if you had watched an episode of the Three Stooges. Kennedy referred to autism as a ‘disease’, versus a developmental disability, and stressed how it destroys families and greatly limits the contributions that persons with this neurological condition can make to society. What a bunch of hogwash! There are many individuals dealing with autism that are living contented, productive lives filled with connection, contribution, and meaning. There are people in the arts, playing sports, employed, paying taxes, enjoying loving relationships, and certainly sitting on the damn toilet! The Secretary’s message is just more misinformation and simply reinforces the stigmatization that holds individuals with an autism diagnosis down and keeps so many in our country from experiencing the gifts and positive impacts that they share. Please join us and the many advocates supporting persons with neurological differences in seeking a future for these incredible, courageous individuals, where they are suitably championed to create and enjoy the lives they deserve!

Elation to Anxiety

By Gerry Beagles • March 3, 2025

The joy and happiness of inclusiveness and acceptance were all around us, fanned by the heavy beat of 70’s rock music being played by the volunteer DJ. It was our agency’s Valentine’s dance, hosted by the varsity baseball team over at St. Laurence High School, and both the individuals we support, and the student-athletes were having a blast. One of the major changes I have personally experienced over the last 50 plus years around services to persons with intellectual and/or developmental disabilities has been the movement to see all of us as people first, realizing that it is all the marvelous differences that brings life its’ juiciness! I was very impressed with the welcoming spirit of the baseball team and their strong determination to ensure that our folks would have a terrific time. The entire coaching staff, led by head coach Pete Lotus, demonstrated true leadership as they jumped in and enjoyed the party as well. Whatever the baseball teams’ record is at the end of the season, the Valentine party was a huge W! Sadly, it only took a few days for the elation we had experienced from the dance to change into stress and anxiety due to statements and actions taken by President Trump and those that seem to be blindly following his agenda. Initially, it was the attempt to stop Federal funding that was a threat to the continuation of our services which caused intense fear and worry with many of our parents, guardians, and families. There was a short reprieve as that executive order was rescinded, only to be followed by the next gut punch in the form of a bill that would cut $880 billion in Medicaid funding, which is the main source of financial backing for disability services in Illinois and throughout the country. It has become the highest priority for all of us to communicate to state and U.S. legislators the unfathomable negative ramifications of this bill becoming law! Some of my colleagues and I are traveling to Washington D.C. next week to share our collective stories with as many congresspeople as possible. Inside the March/April special issue of The Leaflet are some heartfelt reflections by persons whose lives are uplifted daily by the services we provide. I hope you will take a few minutes to reflect on the stories they share. May you be safe, and LOUD!

Cutting Medicaid Funding Hurts Disabled Members of Our Community

By Gerry Beagles • February 28, 2025

Across the many neighborhoods that make up the metropolitan Chicago area, people with intellectual and developmental disabilities (I/DD) rely on an array of support services to live, work and thrive. Nationally, 69% of the community providers that deliver these services are turning away new referrals while 39% are discontinuing existing services because they lack the funding needed to recruit and retain qualified workers. This puts access to services in jeopardy at a time when nearly 512,000 disabled Americans are languishing on their states’ waiting lists. Now, another crisis looms. Community-based services are almost exclusively funded by Medicaid, and in Congress, the House recently approved a budget resolution directing the committee that oversees Medicaid to slash $880 billion in spending. Such a drastic cut will all but dismantle the federal Medicaid program, leaving hundreds of thousands more Americans without the services they need. As a provider of these services, I know firsthand that every community, including this wonderful city of Chicago, is better when it includes everyone— regardless of their disability. If Senators Durbin and Duckworth and Representative Casten agree that our community is stronger when it includes people with disabilities, then they must reject any proposals to cut funding from the federal Medicaid program. Sincerely, Gerry