Neither Rain, Nor Hail, Nor 19.3 inches of Snow ….

A week ago at this time we were still digging out from the blizzard the blew through Chicago land. This time the weather forecasters weren’t out to just scare us, as they were fairly accurate about the amount of the white stuff that we were going to be dealing with. I think the gods mistook the happy dance I was doing for having a decent January as a snow dance and therefore blessed us with an abundance of it. But the purpose for this week’s blog isn’t to complain about Chicago weather, it is to tell the story of all the staff that struggled to make it to work and that put in very long hours, and to share my gratitude for their courage & commitment.

When an agency provides residential services in addition to day programing, it means a commitment to providing care and support 24/7, 365 days a year. It is a huge undertaking, and can only be accomplished through a collaborative effort on the part of dedicated management and direct care staff. In a situation where inclement weather conditions makes travel difficult, we so appreciate those staff that find some way to make it to their designated work site. We also had a number of situations at the houses where the staff that were already on duty agreed to work another shift which meant their relief staff did not have to risk the dodgy travel conditions.

When the weather is so severe that we responsibly close the day programs, we still ask those day program staff that are able to report for work. We then have these day program staff cover the homes in these situations so that the residential staff are not overwhelmed. All of this can be a huge strategic challenge and I am truly amazed at how our staff are able to pull together and get it done! The day in, day out services and support offered by our staff are incredible, but I wanted you all to be aware how often they respond above and beyond the call of duty.

Thank you, thank you, thank you, to all the awesome staff for your incredible commitment to the individuals we support.

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Response to US Health Secretary, Robert F Kennedy Jr.'s, April 16th Briefing on Autism

By Gerry Beagles • April 17, 2025

Any of you that listened to Health Secretary Robert F. Kennedy Jr.’s remarks yesterday about the “autism epidemic” would have spent your time more intelligently if you had watched an episode of the Three Stooges. Kennedy referred to autism as a ‘disease’, versus a developmental disability, and stressed how it destroys families and greatly limits the contributions that persons with this neurological condition can make to society. What a bunch of hogwash! There are many individuals dealing with autism that are living contented, productive lives filled with connection, contribution, and meaning. There are people in the arts, playing sports, employed, paying taxes, enjoying loving relationships, and certainly sitting on the damn toilet! The Secretary’s message is just more misinformation and simply reinforces the stigmatization that holds individuals with an autism diagnosis down and keeps so many in our country from experiencing the gifts and positive impacts that they share. Please join us and the many advocates supporting persons with neurological differences in seeking a future for these incredible, courageous individuals, where they are suitably championed to create and enjoy the lives they deserve!

Elation to Anxiety

By Gerry Beagles • March 3, 2025

The joy and happiness of inclusiveness and acceptance were all around us, fanned by the heavy beat of 70’s rock music being played by the volunteer DJ. It was our agency’s Valentine’s dance, hosted by the varsity baseball team over at St. Laurence High School, and both the individuals we support, and the student-athletes were having a blast. One of the major changes I have personally experienced over the last 50 plus years around services to persons with intellectual and/or developmental disabilities has been the movement to see all of us as people first, realizing that it is all the marvelous differences that brings life its’ juiciness! I was very impressed with the welcoming spirit of the baseball team and their strong determination to ensure that our folks would have a terrific time. The entire coaching staff, led by head coach Pete Lotus, demonstrated true leadership as they jumped in and enjoyed the party as well. Whatever the baseball teams’ record is at the end of the season, the Valentine party was a huge W! Sadly, it only took a few days for the elation we had experienced from the dance to change into stress and anxiety due to statements and actions taken by President Trump and those that seem to be blindly following his agenda. Initially, it was the attempt to stop Federal funding that was a threat to the continuation of our services which caused intense fear and worry with many of our parents, guardians, and families. There was a short reprieve as that executive order was rescinded, only to be followed by the next gut punch in the form of a bill that would cut $880 billion in Medicaid funding, which is the main source of financial backing for disability services in Illinois and throughout the country. It has become the highest priority for all of us to communicate to state and U.S. legislators the unfathomable negative ramifications of this bill becoming law! Some of my colleagues and I are traveling to Washington D.C. next week to share our collective stories with as many congresspeople as possible. Inside the March/April special issue of The Leaflet are some heartfelt reflections by persons whose lives are uplifted daily by the services we provide. I hope you will take a few minutes to reflect on the stories they share. May you be safe, and LOUD!

Cutting Medicaid Funding Hurts Disabled Members of Our Community

By Gerry Beagles • February 28, 2025

Across the many neighborhoods that make up the metropolitan Chicago area, people with intellectual and developmental disabilities (I/DD) rely on an array of support services to live, work and thrive. Nationally, 69% of the community providers that deliver these services are turning away new referrals while 39% are discontinuing existing services because they lack the funding needed to recruit and retain qualified workers. This puts access to services in jeopardy at a time when nearly 512,000 disabled Americans are languishing on their states’ waiting lists. Now, another crisis looms. Community-based services are almost exclusively funded by Medicaid, and in Congress, the House recently approved a budget resolution directing the committee that oversees Medicaid to slash $880 billion in spending. Such a drastic cut will all but dismantle the federal Medicaid program, leaving hundreds of thousands more Americans without the services they need. As a provider of these services, I know firsthand that every community, including this wonderful city of Chicago, is better when it includes everyone— regardless of their disability. If Senators Durbin and Duckworth and Representative Casten agree that our community is stronger when it includes people with disabilities, then they must reject any proposals to cut funding from the federal Medicaid program. Sincerely, Gerry