COVID-19 Update

Gerry Beagles • November 17, 2020

Garden Center Family,

 

We’ve been on quite a journey these past seven months and we wanted to give you an update on where we are as an agency regarding the coronavirus.

 

We closed the Day Programs and sheltered in place starting March 13 th.  Soon afterward, the Illinois Department of Human Services mandated that all Community Day Programs be closed as of March 17 th.

 

We were able to garner assistance in funding through the State and Federal government that helped us through the spring and summer.  We experienced exceptionally high costs due to using a live-in staffing model that we adopted for most of our homes. This was the safest option as we were then able to stop the flow of staff going in and out of the homes for their shifts and this ensured increased safety for all involved.

 

Staff were paid to stay home and we successfully made it through the spring and summer with all our employees being paid their full wages.

 

While we had several staff test positive, none of these cases had resulted in exposures to our consumers.  We successfully kept the virus out of the homes until September 8 th.  We had a staff member test positive and soon we had consumers at the house test positive as well.  Since then we’ve seen the numbers across the state grow at an incredible rate.  We’ve dealt with these same increases at Garden Center as we’ve had cases at two more of our homes.

 

After extensive work to mitigate risk as much as possible, we were able to re-open the Community Day Program on September 14 th. We installed air purifiers, no touch faucets, soap and towel dispensers, ultra-violet air treatments through the HVAC system, in addition to hydrostatic sprayers used for disinfecting. We supported a small but mighty group of consumers until November 6th, at which point a staff member tested positive. We had already planned on closing after the Thanksgiving holidays, through December and January.  With this positive test and the steady, strong growth of the virus numbers, we decided to close the program early.  We thank the families that were able to attend during this time and we hope we will be able to see them again on Feb 11 th.

 

In Illinois there have been 763 positive cases of COVID of people with disabilities living in CILAs.  Thirty one of those people have passed. In long term care, which our 15 bed Intermediate Care Facility falls under, there have been 39,686 cases with 5,493 deaths.

 

Since the start of this journey on March 13 th , we’ve had 9 positive staff and 8 positive consumers.  While most had very minimal symptoms, one employee and one consumer did require hospitalization. Thankfully, all are healthy at this point.

 

We want to thank you for your dedication at this time.  We know it’s been hard with the limited visitation at the homes and the added measures that need to be taken to see your loved one.  We thank you for understanding and for supporting the organization.  Many families have donated meals to the houses, activities of things to do, and have sent their love and care through phone calls and video chats.  We installed Echo devices in each home in the hope of facilitating more individual/family communication.

 

We are moving forward into uncertain territory and we look forward to your support along the way.  We are now able to do our own in-house testing for consumers and staff.  This has added a great capability to make quick decisions when there are possible exposures, and to also pre-emptively test new staff before they work any shifts.  As we move forward we’ll be doing some regular testing at some of the homes where we are serving more medically fragile individuals. We’ve also added Station MD apparatus to most of the homes.  This allows a virtual doctors’ visit and access to a physician 24/7.  These stations come equipped with a bluetooth stethoscope, high resolution camera, and data center.  We’re hopeful these will help us eliminate some unnecessary emergency room visits and gain us medical assistance in a safe, expeditious way, especially on evenings and weekends.  This advancement in technology is possible because of your donations at last year’s Gala during the paddle raise! Thank you for making this possible.

 

As we prepare for the upcoming holiday season, some families have chosen to have their loved ones home over the next month and a half. For everyone else we are still unable to provide in house visits or have consumers easily go back and forth from the group home to their family’s home. We have invested in patio heaters for many of the homes and have cleaned out garages to make them more functional meeting spaces. Additionally, we have prepared the State and Kedzie buildings for family visits as well.  Please contact your QHSP if this is something you’re interesting in scheduling.

 

Please keep us in your thoughts as we move forward through this difficult holiday season and winter.  Garden Center is on a list to get the vaccine in the early stages.  The preliminary data for at least two vaccines looks promising and we’re very hopeful this will help us get to the place where we can easily see each other again and give as many hugs as we want to!

 

Thank you again for your support at this time – we’ll do another update soon.

 

Gerry and Cindy

 

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Any of you that listened to Health Secretary Robert F. Kennedy Jr.’s remarks yesterday about the “autism epidemic” would have spent your time more intelligently if you had watched an episode of the Three Stooges. Kennedy referred to autism as a ‘disease’, versus a developmental disability, and stressed how it destroys families and greatly limits the contributions that persons with this neurological condition can make to society. What a bunch of hogwash! There are many individuals dealing with autism that are living contented, productive lives filled with connection, contribution, and meaning. There are people in the arts, playing sports, employed, paying taxes, enjoying loving relationships, and certainly sitting on the damn toilet! The Secretary’s message is just more misinformation and simply reinforces the stigmatization that holds individuals with an autism diagnosis down and keeps so many in our country from experiencing the gifts and positive impacts that they share.  Please join us and the many advocates supporting persons with neurological differences in seeking a future for these incredible, courageous individuals, where they are suitably championed to create and enjoy the lives they deserve!
By Gerry Beagles March 3, 2025
The joy and happiness of inclusiveness and acceptance were all around us, fanned by the heavy beat of 70’s rock music being played by the volunteer DJ. It was our agency’s Valentine’s dance, hosted by the varsity baseball team over at St. Laurence High School, and both the individuals we support, and the student-athletes were having a blast. One of the major changes I have personally experienced over the last 50 plus years around services to persons with intellectual and/or developmental disabilities has been the movement to see all of us as people first, realizing that it is all the marvelous differences that brings life its’ juiciness! I was very impressed with the welcoming spirit of the baseball team and their strong determination to ensure that our folks would have a terrific time. The entire coaching staff, led by head coach Pete Lotus, demonstrated true leadership as they jumped in and enjoyed the party as well. Whatever the baseball teams’ record is at the end of the season, the Valentine party was a huge W! Sadly, it only took a few days for the elation we had experienced from the dance to change into stress and anxiety due to statements and actions taken by President Trump and those that seem to be blindly following his agenda. Initially, it was the attempt to stop Federal funding that was a threat to the continuation of our services which caused intense fear and worry with many of our parents, guardians, and families. There was a short reprieve as that executive order was rescinded, only to be followed by the next gut punch in the form of a bill that would cut $880 billion in Medicaid funding, which is the main source of financial backing for disability services in Illinois and throughout the country. It has become the highest priority for all of us to communicate to state and U.S. legislators the unfathomable negative ramifications of this bill becoming law! Some of my colleagues and I are traveling to Washington D.C. next week to share our collective stories with as many congresspeople as possible. Inside the March/April special issue of The Leaflet are some heartfelt reflections by persons whose lives are uplifted daily by the services we provide. I hope you will take a few minutes to reflect on the stories they share. May you be safe, and LOUD!
By Gerry Beagles February 28, 2025
Across the many neighborhoods that make up the metropolitan Chicago area, people with intellectual and developmental disabilities (I/DD) rely on an array of support services to live, work and thrive. Nationally, 69% of the community providers that deliver these services are turning away new referrals while 39% are discontinuing existing services because they lack the funding needed to recruit and retain qualified workers. This puts access to services in jeopardy at a time when nearly 512,000 disabled Americans are languishing on their states’ waiting lists. Now, another crisis looms. Community-based services are almost exclusively funded by Medicaid, and in Congress, the House recently approved a budget resolution directing the committee that oversees Medicaid to slash $880 billion in spending. Such a drastic cut will all but dismantle the federal Medicaid program, leaving hundreds of thousands more Americans without the services they need. As a provider of these services, I know firsthand that every community, including this wonderful city of Chicago, is better when it includes everyone— regardless of their disability. If Senators Durbin and Duckworth and Representative Casten agree that our community is stronger when it includes people with disabilities, then they must reject any proposals to cut funding from the federal Medicaid program. Sincerely, Gerry
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